Six-year-old Virsaviya Borun was born with her heart and intestines outside her chest.Virsaviya, a native of Russia who recently moved to South Florida with her mother, suffers from multiple birth defects caused by Pentalogy of Cantrell - a rare congenital condition that occurs in estimated 5.5 in one million live births.
Her intestines are also outside her body and she has no abdominal muscles or a diaphragm.
'When I was pregnant, the doctor said she will not survive, that she is going to die,' the girl's mother, Dari Borun, told NBC
But the medical team in Boston said Virsaviya cannot undergo surgery at the moment because she has high blood pressure in her pulmonary aorta.
The girl will be evaluated again in two years to determine if it would be safe for her to undergo an operation.
Ms Borun has appealed to the public for help, asking for donations to help her cover her daughter’s medical bills and basic living expenses, saying she has very limited means, being a single mother of a special-needs child, and no other family in the US.
The mother and daughter have since moved from Boston to Hollywood, Florida, because Virsaviya is unable to live in a cold climate.
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